Northeast Pennsylvania Center for Independent Living

Free Training Offered

2011-05-24T13:36:00.002-04:00

I’m inviting you to a free training about disability rights and issues, which will be conducted by the PA Statewide Independent Living Council. It will be held on June 2 at the NEPACIL from 10 AM to 3 PM. Light refreshments will be served. A panel of experts will provide you with the latest information regarding:

• The Americans with Disabilities Act Amendments Act;

• Home ownership and home modifications for people with disabilities;

• Medicare changes and how they affect your access to durable medical equipment, supplies, and repairs.

If you'd like to attend or have any questions, contact me by calling 800-344-7211, Ext. 5209, or e mail at kwilliams@nepacil.org.

AFTER 30 YEARS, LIBERTY RESOURCES FORCED TO DOWNSIZE

2011-05-06T10:35:00.004-04:00

Due to continuing economic challenges at the State and Federal level and the recent implementation of unfair rate reimbursement methodology by the Office of Long Term Living, Liberty Resources, Inc. (LRI), Philadelphia’s Center for Independent Living for people with disabilities, is forced to downsize its staff to ensure its future and the continuation of quality services for its existing Consumers. After careful consideration and review of every option to mitigate the large loss of service revenue, LRI made the extremely difficult decision to lay off a significant number of valued employees, many of whom have disabilities.

Numerous unsuccessful attempts to meet with State officials on the unfair and unsustainable rate system were initiated by Liberty and many other service providers over the past year. Unresponsiveness from the Commonwealth of Pennsylvania forced Liberty to take difficult but responsible measures to ensure its continued viability, beginning with a freeze on accepting new Consumers in March of this year and leading to the current layoff of 132 people or 43% of the LRI staff in the Philadelphia and Allentown areas. These circumstances are state- and system- wide with many other providers needing to take similar measures, jeopardizing the health and services of people with disabilities and seniors.

Liberty will continue to provide services for its existing Consumers as well as transitioning people with disabilities out of nursing facilities into cost-saving community-based services. During the economic crunch of the last three years, Liberty has saved the State $38,219,600.00 (thirty eight million, two hundred and nineteen thousand, six hundred dollars) by connecting its Consumers to these community-based services.

“During this difficult time outgoing staff will be supported during this transition through LRI’s provision of outplacement services, a period of continued healthcare benefits and other supports and services,” stated Thomas Earle, Chief Executive Officer of LRI.

Through department consolidation and alignment of the Center, Liberty Resources assures its current Consumers that their services will not be disrupted and they will continue to receive the support that they need to live independently.
____________________________

Liberty Resources, Inc is a 501(c)3 non-profit organization that works with and for people with disabilities to ensure their rights to live independently in accessible, affordable and integrated settings in the community.

Important Notice for Attendant Care Users!

2011-04-26T14:27:00.003-04:00

Many of you are attendant care consumers and have heard about drastic changes to rates, which directly affect consumer services, which threaten our independence. For those who haven't heard, here's the scoop:

The Office of Long Term Living (OLTL) changed policies on January 1st that negatively impact the elderly and people with disabilities who want to receive services in their homes rather than nursing homes. The changes involve restrictions, rates and other administrative procedures. The NEPACIL and consumers will suffer devastating cuts in service if Governor Corbett does not issue a moratorium until all rates have been updated.

As a result, I'm asking consumers to contact their State Representatives and State Senators and voice opposition to the proposed changes. You can find contact information for your legislators at http://www.legis.state.pa.us/index.cfm. Below is a draft message which you can e mail or send a hard copy. Thanks for your help, and contact me at kwilliams@nepacil.org with any questions.

Dear Representative/Senator_______:

I am a person with a disability receiving attendant care/waiver services through the Pennsylvania Attendant Care Program.

I'm extremely concerned that I may lose my services and/or the quality of my services and am requesting your assistance. A proposal by the Office of Long Term Living (OLTL) will have a disastrous impact for people with disabilities receiving home and community based services. They changed bundled rates before all rates were adjusted.

I’m urging you to request the Corbett administration to place an immediate moratorium on any OLTL policy changes until agencies can work with the administration to develop all four of the rates and implement them at the same time - RIGHT RATES FIRST !

I hope that you will support the independence of your constituents, and that of other people with disabilities in the Commonwealth.

Sincerely,

Pennsylvania: Disabled and Aging In Harm’s Way

2011-04-25T11:07:00.002-04:00

No matter how you slice it, the operating funds in CD-PAS W1792 are essential to the continuation and stability of the consumer-directed program and cannot be removed without peril to the entire program.

The rebasing of the other three rates cannot be accomplished without funds from CD-PAS 1792.

Until the rates are all rebased, the CD-PAS W1792 operating funds must remain available as fee for service.

Maintaining a healthy and stable consumer-directed program is the only way Pennsylvania will expand the most cost-effective and popular service model, grow Services My Way across the state, and continue to reach its rebalancing and budget goals.

Pennsylvania: The Sky Is Falling Action Steps

2011-04-25T10:59:00.003-04:00

Action Steps:

-Secure approval to immediately suspend Standard IV.3

-Notify providers in time to avoid system failure

-Communicate with CMS and include changes in Consolidated Work Plan with active stakeholder support

-Continue to develop new rates for all services with a coordinated implementation date

Please take time to contact (email or hard copy) your local legislators by using the link below:

http://www.legis.state.pa.us/cfdocs/legis/home/find.cfm

Pennsylvania: The Sky Is Falling

2011-04-25T10:52:00.003-04:00

Reduction or discontinuation of HCBS services will occur between 4/1/11 and 6/30/12 unless all four rates are rebased together with Standard IV.3 suspended until implementation.

Actions pending or under close evaluation by provider agencies:

-No new consumers into Consumer model

-No new consumers into Agency model

-No new consumers into Service Coordination

-Consumer model elimination

-Agency model elimination

-Service Coordination elimination

FMS & SC

2011-04-22T11:58:00.001-04:00

The adverse impact of the FMS & SC rate issues, the resulting unsustainability of the HCBS system, the continuing harm to current Consumers and those Consumers frozen out, and the irreparable harm caused to the Commonwealth's Long-Term Care System and its HCBS.

DRNPA Files Lawsuit Against OLTL Independent Enrollment Broker Maximus...

2011-04-22T11:33:00.001-04:00

AP News Break: Disabled sue Pa. over alleged delays, denials in getting help to stay in homes

Posted on:
http://www.dailyjournal.net/view/story/8e34d0ff9d7a434096a9df6bbdf724ae/PA--Disabled-at-Home-Lawsuit/

PHILADELPHIA — Disabled Pennsylvanians trying to stay in their homes are suing state welfare officials over alleged delays and denials with their applications for in-home care.

Disability lawyers say long delays are denying their clients help with bathing, meal preparation and other essential needs.

The plaintiffs in a potential class-action suit filed Monday include a Chester County woman with cerebral palsy. The suit says she was denied eligibility in a brief phone call. The disability lawyers say they helped her get an in-home evaluation seven weeks later, and she is now awaiting word on her application.

Robert Meek of the Disability Rights Network of Pennsylvania filed the suit.
Meek says that program funds are still available, and that in-home help is cheaper than nursing-home care.

OLTL - Billing and Rates

2011-04-22T11:30:00.002-04:00

OLTL is changing policies on billing and rates without consideration of impact or implementation, and without notice or stakeholder input.

OLTL's poorly executed changes to the billing process are having a negative effect on Home- and Community- Based Service providers like NEPA CIL, disrupting payment and cash flow, and jeopardizing individuals who are aging and people with disabilities from maintaining their independence in their Homes and Communities who receive services from these providers.

The need for some rates to change to comply with federal rules is not the issue --- rather the ORDER in which they are changed makes the difference between a stable system and one in financial crisis. If the planned payment policy changes happen now, before we have the right set of rates and processes first, agencies that provide consumer-directed services and service coordination will soon not have the funding to keep the programs viable. Consumers will be faced with uncertainty and faced with the possible loss of the support services that enables them to live independently.

YOUR ADVOCACY IS NEEDED.

PLEASE CONTACT YOUR STATE SENATOR AND STATE REPRESENTATIVE, and ask for their help on behalf of the consumers who utilize our services for their independence, and on behalf of our employees who serve these consumers.

Rate Update, CLAC Meeting

2011-04-22T11:29:00.001-04:00

At today's CLAC meeting, Dave Gingerich relayed that less than half the Providers submitted rate surveys to OLTL by April 15th, 2011.

If you did not submit a survey on April 15th, 2011, expecting that OLTL would be using the previous survey you submitted, we encourage you to contact OLTL and let them know to use the previous survey submitted.

Dave also relayed that due to the lack of surveys submitted, OLTL will accept additional surveys from providers who have not submitted them. acomarnits@state.pa.us

The CLAC made an official request for the list of providers who have participated in submitting the surveys.
The rate meeting with OLTL is scheduled for May 3, 2011, beginning at 9:00 a.m. at Forum Place.

Right Rates First Advocacy

2011-04-22T11:28:00.001-04:00

PAPCA Board:

CRI employees have been busy sending the Right Rates First letters to legislators this week. I am estimating so far about 150 employees have sent about 300+ letters to their legislators. We are getting responses from some legislators that they are sending messages to the Governor for him to sort this out.

Next will be a modified letter to the governor's office, asking for a conversation to help avert a disaster for Pennsylvania's disabled community.

I strongly urge the Provider Coalition membership to pick up the pen (or
email) and ask the legislators for help fixing this problem remaining from the last administration.

Congress Helps People With Disabilities

2010-09-30T07:26:00.002-04:00

The ADA may help with ramps, elevators, and curb cuts but what about smart phones, the Internet, hand held devices? Hopefully many many people will be able to benefit.

Rep. Edward Markey, Mass. and Sen. Mark Pryor Ark. are the main sponsors of an act to make the visual and hearing more accessible to today's technology.

"The measure sets federal guidelines for the telecommunications industry assuring that the blind will have access to the Web through improved user interfaces for smart phones. Also, over time, more than 60 hours a week of video programming must have audio descriptions.

It will also:
- Make TV program guides and selection menus accessible to people with vision loss.
- Require that video programming devices such as MP3 players and digital video recorders be capable of closed captioning, video description and emergency alerts.
- Require that remote controls have buttons to easily access the closed captioning on broadcast and pay TV.
- Provide funds to help the low-income disabled buy accessible Internet technology.
- Provide the deaf with the ability to watch new TV programs online with captions included."

http://www.google.com/hostednews/ap/article/ALeqM5iMt_aKo3XfFjkG5Hnlbt74jkNT5AD9IHM0N80?docId=D9IHM0N80

Service Dog Can't Fly, ADA Doesn't Help

2010-09-27T07:25:00.002-04:00

You want to go on a flight with your service dog. You follow the procedures getting all the information you may need ready. What do you do when you're denied entry because your 'service dog' is just an ordinary dog. Then you try another airline and the two of you are allowed to fly without issue.

Would the ticket agent be skeptical of someone in a wheelchair? Using American Sign Language?

A Continental Airline ticket agent did just that. A United airline followed through and allowed the woman to fly with her service dog.

Continental has kind of admitted a mistake as they say the ticket agent "failure to provide you with the correct information would be considered a violation of federal disability law."

But Continental thinks the woman is a valuable customer and doesn't want to lose her business as they "offered her a couple of coupons to make good -- one for 10 percent off of a flight and another for a free drink. She says she'll need to give them to a friend because she's given up on flying for the time being."

Good job Continental. Hopefully this is an isolated incident and not normal.

http://consumerist.com/2010/08/continental-refuses-to-believe-womans-service-dog-is-real.html

http://consumerist.com/2010/09/continental-sorta-apologizes-for-not-allowing-service-dog-on-flight.html

(Some) Health Care Provisions In Effect Now

2010-09-24T07:02:00.004-04:00

Yesterday was a big day for health care. May provisions went into effect helping those who otherwise would have lost coverage or could not get coverage.

- Insurers can no longer deny coverage to children based on pre-existing conditions
- Annual limits will be banned on new plans (and all plans in 2014)
- Consumers will be able to appeal claims decisions through an external review process
- Up to 4 million small businesses become eligible for tax credits to provide insurance
- An estimated 4 million seniors will begin to receive $250 checks for prescription coverage gaps
- New resources will be used to crack down on health care fraud and waste
- New state or federal pools will offer coverage for adults with pre-existing conditions
- Incentives such as scholarships and loan repayments will be offered to build up primary care
- States requiring insurers to justify premium increases could win grants and ban insurers from exchanges
- Extra payments will be available to rural health care providers in underserved areas

If you want to know when a provision goes into effect by year go to http://www.healthcare.gov/law/about/order/byyear.html

Does Haunted House Mean Disrespect?

2010-09-22T07:15:00.002-04:00

In 2 days a Halloween Haunted House is set to open at the Pennhurst State School and Hospital. It was a home for the mentally disabled. The Arc of PA sees it as "an abomination" because of how it is perceived for people with disabilities.

On first hearing the name 'state school and hospital,' those without knowledge of what it was does not setup any negative thoughts. However, when you learn it was a home for the mentally disabled, does that change your opinion?

Will the haunted house use the occasion to disrespect the former residents? It would inappropriate for them to do so and we hope they wouldn't. If the haunted house is successful this year it may become a yearly attraction.

http://www.philly.com/inquirer/local/pa/20100915_Advocacy_group_blasts__asylum__at_Pennhurst.html

Abilities Lead To Epic Swim

2010-09-20T07:04:00.003-04:00

Quick, how long would it take for someone who is a quadruple amputee to swim 21 miles? Try 13 1/2 hours.

Philippe Croizon, lost his limbs in an electrical accident, didn't let his abilities be wasted. His team expected it would take around 24 hours.

He said after, ""I've done this for myself, for my family, and for all those who have suffered tragedy and lost their taste for life."

It was the latest and most spectacular achievement by a man whose limbs were amputated after an electrical accident 16 years ago. Croizon's attitude to the disability is summed up by his memoir, which is entitled J'ai Décidé de Vivre, meaning 'I decided to live'.

In March 1994, Croizon – then a metalworker – climbed a ladder to dismantle a television aerial on his roof and it touched a power line. A shock of 20,000 volts nearly killed him and caused injuries which necessitated the removal of his arms and legs.

In hospital, he watched a TV documentary about swimming the Channel and fixed upon his eventual ambition. He has spent the last two years honing his swimming technique, spending around 30 hours each week in the waters off France's Atlantic coast.

He propels himself using long flippers attached to the stumps of his legs, with attachments on his arms helping him to steer and a mask and snorkel to breathe.

The method lets him average about two miles per hour."

http://www.guardian.co.uk/world/2010/sep/19/quadruple-amputee-swims-channel

Consumers Weep CWC Enacted

2010-09-16T07:12:00.002-04:00

With the swipes of a pen, consumers lost big time yesterday, as the Consumer Workforce Council was signed by Executive Order. So much for putting this to a vote or having any common sense.

Read the press release below.

"Currently, Pennsylvania faces an acute shortage of direct caregivers, a shortage estimated at about 10,000 workers. As a result, consumers who directly hire their own caregivers are not always able to dependably recruit and retain workers who are right for them. Attendants in Pennsylvania are paid an average of $9.10 an hour, and they usually receive no health insurance, sick days, vacation or retirement through their jobs. As a result, turnover rates can be as high as 100 percent and there is no backup system to help people when their caregiver calls off or quits.

Executive Order 2010-04 helps address the long-term care needs of seniors and people with disabilities who prefer to use the consumer-employer home care model, and the direct care workers who assist them with independent living. The consumer-employer home care model allows individuals to hire, manage, schedule, train and terminate the home care provider of their choice.

"Pennsylvanian's deserve the right to choose the way they receive home care and we have a responsibility to ensure access to high-quality services enabling them to live independently for as long as they wish," Governor Rendell said. "This executive order protects the rights and well-being of consumers by implementing policies to ensure an available, high quality workforce."

The order creates the Consumer Workforce Council comprised of seniors and people with disabilities who employ their own attendants to serve as the policy voice to make recommendations to expand the consumer-directed model of home care – especially in regards to the number of available, qualified and reliable home care attendants. It also guarantees the rights of employees to elect a union representative should they so choose. The executive order enables caregivers and consumers to work together to tackle the chronic workforce issues such as turnover, training and benefits in order to help stabilize the consumer-employer home care workforce.

Both orders take effect immediately."

http://www.prnewswire.com/news-releases/governor-rendell-signs-executive-orders-to-improve-agriculture-and-healthcare-102994854.html

Rock Band With Disabilities

2010-09-13T07:20:00.002-04:00

Can you read sheet music? Can you play an instrument? Write your own songs? Learn over 100 cover songs? But you have a disability so that's not going to happen. WRONG!!!!!!!!!

The band, FLAME, from upstate New York, has rocked everywhere they've been.

They have played on national television (Good Morning America), NYC Mayor Bloomberg, at disability rights advocate Eunice Kennedy Schriver's wake, and abroad (Greece.)

What "makes FLAME special? Each of the band’s 11 members has some kind of disability, such as autism, Down syndrome, blindness or a cognitive disability."

Over the years, the group has released three CDs: “All for a Reason,” “Holiday Classics,” and “Live at the Glove.” A fourth is expected to be available this November."

http://www.newbernsj.com/common/printer/view.php?db=nbsj&id=90436

NEPACIL Blog Recognition

2010-09-09T07:15:00.002-04:00

We are pleased to announce that the NEPACIL Blog has been named one of the "50 Best Blogs about Learning Disabilities."

The following was received (with much excitement at NEPACIL.)

"I am writing to inform you that Northeast Pennsylvania Center for Independent Living has been featured on Guide to Online School's list of the Best Learning Disabilities Blogs found here: http://www.guidetoonlineschools.com/tips-and-tools/learning-disabilities-blogs. We hand-picked a list of our favorite blogs by people who are writing about learning disabilities and outlined the unique reasons why we love them. We love your site because you encourage people with disabilities to not only socialize in mainstream society, but to self-advocate as well. Very commendable."

Nathan Grimm Program Manager - SR Education Group

Thank you Mr. Grimm and the SR Education Group. We will continue to help people with disabilities live independently and show that your disability does not have to define who you are. We all have ability, but for some people it takes a little longer to figure out.

Local Athlete World Dreams

2010-09-07T07:44:00.002-04:00

There's a big fundraiser this weekend for Stephanie Jallen. She wants to go to Russia to compete as a Paralympic skiier. She's 14-years-old. Talk about talented. Hopefully, it her abilities get her there and it's not for lack of funding.

"Stephanie, 14, of Harding, was born with CHILD syndrome, a rare birth defect for which the formal name is congenital hemidysplasia with ichthyosiform erythroderma and limb defects. The disorder, which almost always impacts females, causes underdevelopment on one side of the body, as well as painful rashes and problems with limbs on the affected side.

Stephanie's left leg was amputated at birth. Her left arm is underdeveloped, ending in one finger where most people have an elbow.

Using one ski and a specially adapted ski pole, she can ski down mountains at speeds so fast it takes 50 yards to come to a complete stop.

In 3½ years, she hopes to represent the U.S. in the Sochi, Russia, Paralympic Games, a competition for visually or physically disabled athletes held in conjunction with the Olympic Games.

The qualification process will probably take four years. The travel and equipment involved are expensive; on Saturday, an antique car show and auction in Scranton will benefit the Stephanie Jallen Paralympic Fund.

Each year, training, travel and competitions require $35,000 to $50,000, said Jim Gaughan, a board member of the Stephanie Jallen Paralympics Fund, which raises money to help offset the cost.

NEPA Antique Classic Car Show and Auction
When: Saturday, Sept. 11 (Rain date: Sept. 12)
Where: 860 N. Keyser Ave., Scranton
What: Live music, vendors, food, games, door prizes, car show (people's choice), car corral, sale of antique cars
Registration: 8 a.m.-noon (free T-shirt for first 250 registered)
Judging: Noon-2 p.m.
Awards: 3 p.m.
All proceeds benefit Stephanie Jallen Paralympic Fund
For more information: www.stephaniejallen.org

http://thetimes-tribune.com/news/paralympic-skier-aims-for-russia-1.996445

NEPACIL Closed For Labor Day September 6

2010-09-03T06:56:00.002-04:00

Folks, we'll be observing Labor Day on Monday so our office will be closed. We'll re-open as usual on Tuesday. Voicemail and E-mail are available 24/7 (don't expect a response until Tuesday.)

Who Decides Your Care When You Can't

2010-08-31T07:05:00.002-04:00

What are your wishes if you are unable to make decisions about your health? Who is making the decision(s)? If you're unable to regain consciousness do you want "the plug pulled?" What if the circumstance are 50-50 that you'll go back to your normal way of life?

Do you have a living will? Are you able to understand all that is involved with a living will? It can be complicated but the basic understanding is, if something happens to me and I can't make a medical decision regarding my health (for whatever that maybe) what do I want done.

"Pennsylvania's Supreme Court has ruled against family members who wanted to end the life of a man with mental disabilities."

David Hockenberry, has had acute mental disabilities all his life, came down with pneumonia and was hospitalized. His parents decided that this was too much for David and that treatment should be stopped.

"The court ruled that state law requires life-preserving treatment for people who are not near death and have not refused treatment."

David recovered in a few weeks.

Is there more to the story? Possibly. For good or bad, his parents, thought he would be better off dying than getting healthy. We can only speculate, perhaps they could no longer take care of him (if that's the case.) Maybe they don't know that there are services out there to help.

Everyone that can make a decision on their health before they're unable to should take note, how do you want your life to play out? How long do you wish to continue life if you'll never awaken and can not live without life support?

Decisions like these are never easy. However, they should be made now, when you're able to decide before your loved ones are asked, 'What would ____ want me to do?'

http://www.onenewsnow.com/Legal/Default.aspx?id=1136012

Consumer-Attendant Accused For Fraud

2010-08-27T07:54:00.003-04:00

With anything in life, a few people can ruin (fill in your own blank) for everybody. When it comes to scamming people with disabilities, the elderly, or children, everyone gets more than upset. However, when the scammer is one of the above mentioned, the entire (fill in your own blank) can be subject to questioning - guilt by association.

Mary Lou Hasker is accused of fraud with her attendant. They said the attendant "worked" (if by signing his name can be considered work.) Ms. Hasker then took 80% to the attendants 20% for a period of 1 year.

Hopefully, this is a rare case, as thousands of people with disabilities rely on attendants everyday.

http://www.timesleader.com/news/Disabled_woman_withdraws_plea_for_fraud_08-25-2010.html

Thanks for the blog follower who sent this in, I missed this article.

Traveling With A Disability

2010-08-24T08:18:00.002-04:00

Day-to-day life can be tough as it is when you have a disability, but, what if you want to travel? Depending on your disability it could be like taking another person (expense wise) if there are extra fees involved.

This little bit of information maybe helpful for those that will be flying.

"Question: Are there any provisions to have the baggage check-in fees waived for people with disabilities who cannot carry their bags on board?

Answer: The short answer is no, but that doesn't tell the whole story.
Two years ago, my grandmother, who has difficulty walking, flew Continental. She called the airline in advance to arrange for wheelchair assistance. She brought along a carry-on suitcase, which airport and then airline personnel helped her transport and store in the overhead bin.

Most airlines offer courtesy wheelchair assistance, but you should always check the requirements and limitations when you make your reservations. Some smaller aircraft are not large enough for wheelchair access. Others may have portable stair-access and require a special lift for passengers who use wheelchairs.

All major U.S. carriers will waive baggage check-in fees for wheelchairs - and in most cases, other assistant devices such as scooters or braces - and medical supplies.

But be sure you fully read an airline's baggage fee policies. For example, on Delta, if you include medical supplies or equipment in a bag that contains "nonessential items" (clothes, shoes, etc.), the bag will no longer qualify for an exemption and you will have to pay the baggage fee."

http://www.kansascity.com/2010/08/23/2167808/travel-qa-disabilities-wont-wipe.html

21, 451 Charges Of Discrimination Of Disabled Workers

2010-08-20T07:01:00.003-04:00

Have a disability and think you're being discriminated against? Do you file a charge with the Equal Employment Opportunity Commission (EEOC) as 21, 451 people have in 2009.

"The main reasons for the increase: the recession and an amendment to the ADA that broadened the definition of what it means to be disabled.....people with disabilities may be seen as less productive, which puts them more at risk of layoffs. Besides being fired, complaints include being overlooked for promotion, not being switched to a job that matches the person's abilities or not getting accommodations such as computer upgrades to be able to do a job."

If you've been in a situation where you have been discriminated against because of your disability let us know.

http://www.usatoday.com/news/nation/2010-08-20-1Aeeoc20_ST_N.htm

NJ Laws Put People Before Disability

2010-08-18T06:53:00.002-04:00

As we push for recognition as People with Disabilities and get away from the h-word (handicap), it seems like a never-ending battle. New Jersey is taking the steps to change the wording of laws to reflect the correct terms.

Sponsored By State Senate President Stephen Sweeney, whose daughter is learning-disabled, Governor Christie signed the law to change existing laws/regulations.

Removed are "offensive references to /people with disabilities/ from state statutes and regulations. The bill eliminates outdated terms such as mentally retarded and feebleminded.

Preferred terms are intellectual disability and developmental disability.

The new law also promotes so-called "person-first" language. For example, it's preferred to say a person with a disability rather than a disabled person."

Will any elected official do the same for Pennsylvania? How about nationally? Someday we won't have to correct someone when they say "handicap parking" "handicap bathrooms" "handicap ____."

http://www.philly.com/inquirer/local/nj/20100817_N_J__updates_terms_for_people_with_disabilities.html#ixzz0wxOw1UhV

Ms. Wheelchair Title Goes To Ms. North Carolina

2010-08-16T07:59:00.002-04:00

Congratulations to Ms. Alexandra McArthur, who on Saturday, won the title of Ms. Wheelchair America. After a week of pageantry, 28 contestants, competed for the crown.

Among the final 28, was NEPACIL's 20th Anniversary of the ADA, guest speaker Ms. Wheelchair PA 2010, Kristin Durniok. Way to go Kristin!

http://davidsonnews.net/2010/08/15/ms-wheelchair-america-crown-goes-to-alex-mcarthur/

Autism Diagnosis Breakthough

2010-08-11T07:26:00.002-04:00

"A 15-minute brain scan could in future be used to test for autism, helping doctors diagnose the complex condition more cheaply and accurately.

British scientists said on Tuesday their rapid test had proved more than 90 percent accurate in adults and there was no reason why it should not work equally well in children.

It could be a boon for patients and their doctors by reducing reliance on time-consuming and emotionally trying assessments based on interviews and behavioral observation.

The new scanning method -- which picks up on structural changes in the brain's grey matter -- could be ready for general use in a couple of years. The next goal is to test it in children.

"What we are working on now is to see if we find the same results in younger people," research leader Declan Murphy, professor of psychiatry at the Institute of Psychiatry, King's College London, said in an interview."

http://www.reuters.com/article/idUSTRE6795I420100810

ADA Hurts People With Disabilities

2010-08-09T06:49:00.002-04:00

Is the ADA hurting people with disabilities? Would the disability community be better off had the ADA not passed? Think of the changes in your life if you have a disability (if you don't think of the changes you see), would they have been made had the ADA not been enacted?

Some people (as we've mentioned before U.S. Senate Republican candidate from Kentucky Rand Paul) thinks businesses should be allowed to make their own accommodations, but he's joined by people with disabilities as well. This scenario not only includes being a consumer but looking for employment. The unemployment rate for people with disabilities is (estimated at) 60%.

Has the ADA impacted you negatively? Please let us know.

http://www.newsweek.com/2010/08/05/did-the-americans-with-disabilities-act-hurt-some-people-with-disabilities.html

PA Healthcare For Uninsured With Pre-Existing Conditions

2010-08-05T07:00:00.004-04:00

The (PA) Insurance Department has a new program, PA Fair Care, that allows PA adults, with pre-existing conditions, to have health insurance.

For $283.20 monthly, possible benefits include preventive care, physician visits, testing, hospitalization, prescriptions, etc. (Follow link below for more information.)

You're eligible if you are:
o A U.S. citizen or lawful resident
o A Pennsylvania resident
o Have a pre-existing health condition
o Be uninsured for the previous six months

PA Fair Care has started accepting applications. You can complete the application online at http://www.pafaircare.com/, or the toll free helpline - 1-888-767-7015 (TTY 1-888-767-7018) Monday thru Friday, 8:30 a.m. - 4:30 p.m.

Congress & A Representative With A Disability

2010-08-03T10:33:00.004-04:00

With the 20th Anniversary of the ADA this past week another occasion was marked, in Congress, with Rep. Jim Langevin, D-RI, presiding over the House of Representatives.

Rep. Langevin, elected in 2000, "was the first quadriplegic elected to the House, used a newly installed mechanical lift system to gain access to the speaker's podium in his motorized wheelchair."

http://www.google.com/hostednews/ap/article/ALeqM5j-kZd47YtwZIO95YnSEm1S40hpRAD9H716SG4

Disabilities & Bad Attitude

2010-07-30T07:49:00.003-04:00

A news story is gaining attention about a security guard preventing someone with a disability from using a lawn chair while waiting in line at a concert. The person wronged got on Twitter, told of the experience, the company found out, the person got fired. (Link at the bottom.)

The issue of concern to touch upon here is with people without disabilities and ignorance. The security guard was a repeat offender of having a bad attitude towards the public so the person with a disability wasn't singled out because of the disability. Perhaps another person would have acted different.

The quote to take away from the security guard (regarding the lawn chair) "These handicapped people want everything. First they want chairs, then what? If you're so handicapped don't come this early, or better yet don't come at all."

In situations like these (not necessarily with the bad attitude) can the person without the disability be guilty of ignorance and the outcome not be as bad? Could the issue have been the same - not able to use the lawn chair - and not got the attention, if the security guard said, you can't use it because _________. If the security guard does it politely, is the situation as bad or is this just a case of disability ignorance?

http://consumerist.com/2010/07/i-used-twitter-to-score-free-concert-tickets-and-get-cruel-live-nation-security-guard-fired.html

ADA Luncheon Photo (From The Times-Tribune)

2010-07-28T07:09:00.001-04:00

The Times-Tribune has a photo of the ADA Luncheon. NEPACIL Executive Director Daniel Loftus was welcoming the hundreds of people at Monday's ADA Luncheon at St. Mary's Center, Scranton, PA.

http://thetimes-tribune.mycapture.com/mycapture/enlarge.asp?image=30740969&event=1047591&CategoryID=49658

ADA Luncheon A Grand Event, Thank You

2010-07-27T07:29:00.003-04:00

Thank you to everyone making yesterday's ADA Luncheon such a grand event. From the sponsors to the awardees to St. Mary's Center, the 20th Anniversary of the ADA was a special event.

Be sure to check back for photos.

Happy Anniversary ADA - Join Us At The ADA Luncheon

2010-07-26T07:15:00.002-04:00

It was a long time coming (the ADA) and all the hard work to getting the ADA passed paid off. It wasn't perfect but it was a start. There's more to do, but today let's celebrate the achievement and historic anniversary that today is - the 20th Anniversary of the ADA.

You're invited to the ADA Luncheon today at noon, St. Mary's Center, Scranton.

If you're not able to make it please take a moment to reflect on how the ADA changed your life (hopefully for the better.)

ADA Luncheon - RSVP Today!

2010-07-22T07:08:00.004-04:00

We're very excited about the 20th Anniversary of the ADA. The luncheon will be a great time as we'll recognize those who have been making a positive contribution to society for people with disabilities. Many awardees have been fighting much longer than the 20 years the ADA has been around.

It's not too late to make a reservation. Tickets are going fast.

ADA 20th Anniversary
July 26, 1990 - July 26, 2010
Luncheon at St. Mary's Center,
Scranton, PA
RSVP 344-7211

86 Years Old And Rolling

2010-07-19T07:59:00.002-04:00

We hope that age doesn't hinder our lives especially those with disabilities. As we get older our abilities lessen from poor eyesight to strength to memory loss. However, if we stay active and use our abilities as long as possible we'll (hopefully, if lucky) slow the progression.

Doris Merrill, a 86-year-old from Nanticoke, rolled to 4 medals at the 30th annual National Veterans Wheelchair Games earlier this month in Denver, CO.

""It's a bridge to the walking world," Ms. Merrill said. "People forget my disability, and that is the greatest compliment."

Ms. Merrill was paralyzed in 1944 in a swimming accident while serving in the Navy. Two years later, she was diagnosed with multiple sclerosis.

At 86, neither medical condition has slowed Ms. Merrill completely. She has regained the ability to move her limbs slightly and has been competing in Veterans Wheelchair Games since 1999.

At the recent wheelchair games in Denver, Ms. Merrill participated in several events, including the slalom, motorized wheelchair rally, ramp bowling and the Powerchair 200.

In the motorized wheelchair rally, Ms. Merrill had to use a map to find checkpoints and answer trivia questions at each one. In the slalom, Ms. Merrill maneuvered her wheelchair through cones, slopes and other obstacles to a finish line.""

http://thetimes-tribune.com/news/woman-86-rolls-to-four-victories-in-the-national-veterans-wheelchair-games-1.895120

Get Your ADA Honorees In

2010-07-16T07:43:00.002-04:00

It's not too late to nominate someone for recognition they've done in the spirit of the ADA. The person(s) must be from Northeast Pennsylvania.

We want to thank them for their contribution and give a much deserve thank you.

Call our office at 344-7211 and let us know about that person(s).

NEPACIL Closed July 14 and 15

2010-07-13T07:23:00.001-04:00

Sorry folks, but we'll be closed for a few days for training. We'll be open on Friday, July 16 at 8:30 am

OPTIONS Newsletter Available - ADA Luncheon Information

2010-07-09T07:30:00.002-04:00

Folks, the latest edition of NEPACIL's OPTIONS Newsletter is available be sure to check it out. The contact information is listed for the ADA luncheon, July 26th, 12pm, St. Mary's Center, Scranton, PA. Call Mary Kay, with your RSVP, 570-344-7211 ext. 230

If you're on our mailing list, you should have received your newsletter?

Did you move? Do we have your new address? Let us know.

Not on our mailing list? Why not? Keep up-to-date with NEPACIL News.

http://www.nepacil.org/OPTIONS.html

Accessible Stall For People With Disabilities Only?

2010-07-06T07:30:00.002-04:00

A Dear Abby reader in May asked if it was okay to use an accessible stall because she a "plus-size woman." The ladies mother was upset by it as she said accessible stalls are just like accessible parking spaces - restricted to those who need it.

Abby told the reader that the woman should use the stall if there is nobody with a disability there - if someone enters at the same time and has a disability, that person should get preference.

This past week, readers voiced their opinion - should the stall be used? Who gets preference?

As someone who uses an accessible stall, there should be no reason it should not be used as any other stall. However, in most restrooms there are more non-accessible stalls than accessible stalls, so if possible those without disabilities should chose those (non-accessible) first but they are under no obligation.

If the restroom is empty when you enter - you pick a stall. If someone enters, at the same time as you, please use another stall.

http://www.philly.com/dailynews/features/20100501_Dear_Abby__Is_it_OK_to_use_handicap_stall_if_you_re_a_plus-sized_person_.html

http://www.philly.com/philly/entertainment/20100701_Dear_Abby__Are_restrooms_for_disabled_for_use_only_by_the_disabled_.html

NEPACIL Closed July 5th

2010-07-02T07:05:00.002-04:00

Just a reminder that NEPACIL will be closed on July 5th.

Hope everyone has a good, safe, fun Fourth of July.

New Accessible Vehicle Now Available

2010-06-29T09:06:00.002-04:00

You may have seen an accessible mini-van that was modified with a lower floor, removal front seats, and ramp but a new vehicle is hitting the market. The Vehicle Production Group or VPG's vehicle, the MV-1 is going on tour to show off it's appeal for people with disabilities.

The MV-1 is a welcome sight since many automobile companies are no longer building mini-vans in favor of SUVs or green cars. The van look is not flashy but anyone would take accessibility over look.

http://content.usatoday.com/communities/driveon/post/2010/06/specially-built-wheelchair-van-starts-national-tour-today/1

ADA Events Reminders

2010-06-25T09:31:00.003-04:00

2 Big Events - Save the Dates

ADA Celebration/Proclamation at McDade Park

July 23rd 11 am - 1pm

ADA Luncheon

St. Mary's Center, Scranton

July 26th 12 pm - 3:30 pm

Reserve seating $10

Call NEPACIL for more details

344-7211

Budget Time Expects Program Cuts

2010-06-22T07:11:00.003-04:00

It's time again when we need to be worried of states balancing their budgets. Why? Because most states are forced to cut funding in some programs while eliminating others. The fiscal year ends soon and if PA history tells us anything, it's that unless the budget is passed by the legislature and signed by the governor, we need to keep fighting for funding.

New Jersey residents with disabilities got a wake-up call when Gov. Christie wanted to cut funding for disability-related programs. All parties came to an agreement after days of saying drastic cuts were needed. "Developmental disabilities, personal assistance home care, education services for blind children, adult medical day care, and sheltered workshops for people with disabilities also will receive more funding under the compromise."

http://www.philly.com/inquirer/front_page/20100622_N_J__
budget_deal_restores_funds_for_students__disabled.html#ixzz0ra7qGuOE

When Technology Fails Us

2010-06-17T07:58:00.002-04:00

Yesterday, we had an issue with out Internet being down all day. Everyone had to scramble to find alternate work since we were unable to check e-mail, fill out information needed by the state for consumers, look-up directions to consumer homes, etc. While we still had electricity, water, and food, we were without a new necessity in our lives. How did we manage without technology?

What alternative plans do you have if you rely on technology? What do you do if the power goes out and you use a breathing machine? How do you charge your power wheelchair? What do you do? Do you have a plan in place?

For those living with someone or if someone knows your schedule you should be okay. However, if you live alone and do not rely on anyone, how would anyone know you can't leave your home because your power wheelchair isn't charged? Do you have a cellphone in case your phone line is not working?

The time to plan for disasters is when there are none. While you may not have every scenario planned out, having some idea of how you will get by for a day, 2 days, or a week and beyond will save you time and stress. Plan now!

Accessible Apts. To Open In Blakely, Lackawanna County

2010-06-15T07:14:00.002-04:00

NEPACIL's Rory Giovannucci, Disability and Housing Advocate, was on hand, with soon to be resident, Pat Zabrowski, showing WNEP's Trish Hartman all the features in Lackawanna County's Blakely Apts.

Federal Stimulus money was used to make the apartments (four totally accessible) with "larger bathroom with handicap bars, lower light switches and thermostats, and lower counter tops."

"Folks from the Northeast Pennsylvania Center for Independent Living helped to make sure the apartments meet the standards of the Americans with Disabilities Act."This allows them the radius to turn, it allows them independent living, in other words, being able to work, cook for themselves, take care of themselves, and sometimes with attendant care to do other things," said Disability Advocate Rory Giovannucci."

Follow the link for video

http://www.wnep.com/news/countybycounty/wnep-lackawanna-housing-improvements,0,2771599.story

Washington, DC Hosts Largest Festival Of Artists With Disabilities

2010-06-11T07:09:00.004-04:00

With the ADA 20th Anniversary fast approaching (July 26th), special events are happening near (NEPACIL luncheon at St. Mary's Center) to our nation's capital and the largest festival of artists' with disabilities.

The 2010 International VSA Festival in Washington, hosted by the Kennedy Center for the Performing Arts, runs through "June 12 and features many free daily performances, films and visual arts." A exhibit of 130 pieces will remain at the Smithsonian on view through Aug. 29.

"Renowned glass artist Dale Chihuly contributed a large-scale installation. Performances will feature singer Patti LaBelle, as well as Josh Blue, who won season four of "Last Comic Standing."
Organizers brought in more than 600 artists, performers and educators from around the world, including students from every state who competed to have their work shown at Washington's Union Station."

"The festival was timed to coincide with the 20th anniversary of the Americans With Disabilities Act. The exhibits are designed to be more accessible to disabled audiences than ever before. They include touchable examples of artworks, audio descriptions and labels written with Braille, curator Stephanie Moore said.

One installation, "Sight Unseen," is the first major exhibit of the most-accomplished photographers with visual impairments. One section includes images with raised ink to allow blind visitors to feel the shape and dimension of the photograph.

Another exhibit features the work of Judith Scott, who was kept in an institution for 35 years with Down syndrome but began creating sculptures from yarn, paper towels and other simple materials almost constantly for 18 years once she was released to her sister's custody.

"What I really want people to see is that, indeed, artists with disabilities play a major role in the arts community," said Kennedy Center President Michael Kaiser. "It is crucial that we not disenfranchise that segment of our population.""

http://www.google.com/hostednews/ap/article/ALeqM5gcxYqTYr0-yS9LgLsTtqNTovozhgD9G7ASUG4

ADA & Politics: Speaking Out But Not Knowing Law

2010-06-09T08:23:00.005-04:00

A hot topic the past few weeks has been U.S. Senator Republican candidate of Kentucky Rand Paul and his disagreement with some aspects of the Civil Rights Act and ADA. Much has been said in previous posts (whether you agree with what he believes or not), however an issue being overlooked is the example he uses (see below.)

We can not expect every politician to know about every aspect of every issue. However, when you are using examples and you are incorrect (repeating this over and over), does that deserve more criticism than being for/against an issue?

Paul's people are doing him a disservice by allowing him to use examples that are not covered under the ADA as if they were. People with Disabilities need to make this clear because, if elected, not only will he have a say in laws for Kentucky but the country.

"Now the media is twisting my small government message, making me out to be a crusader for repeal of the Americans for Disabilities Act and The Fair Housing Act. Again, this is patently untrue. I have simply pointed out areas within these broad federal laws that have financially burdened many smaller businesses.

For example, should a small business in a two-story building have to put in a costly elevator, even if it threatens their economic viability? Wouldn’t it be better to allow that business to give a handicapped employee a ground floor office? We need more businesses and jobs, not fewer."

http://www.bgdailynews.com/articles/2010/06/06/opinion/commentary/comm1.prt

Hot Topic: Voting For/Against Your Interests

2010-06-07T07:37:00.002-04:00

The NEPACIL forum has been heating up with debate over the post regarding ADA And Politician's Views http://groups.google.com/group/nepacil/t/3063c5dd2a085a48

Many have discussed back an forth over the issue taken with U.S. Senatorial Republican Candidate of Kentucky Rand Paul and his saying he would favor local government making the decisions regarding accessibility and the ADA not the federal government.

How do you decide to vote against your interests? How do you weigh the decision?

If you are registered in the __________ party and agree with (most) of their views, what do you do when the candidate of ___________ party votes for/against your job/town etc?

For example, I belong to the X party. I voted for X party candidates my whole life. Now the new candidate wants to make wearing grey shirts on Tuesday against the law. I like wearing grey shirts on Tuesday. I agree with the candidate on everything else, but grey is my favorite color. Do I vote for the candidate? Vote for the opponent, even though I disagree with all the candidates views?

Each election we maybe faced with this issue. How do you decide whom to vote for?

New Phone For People With Disabilities

2010-06-03T07:03:00.002-04:00

Do you want a cell phone but have difficulty with the buttons? Enter the DooPhone.

DooPhone available June 8th and is a very reasonable $79/year for the basic version.

You can have pictures of your contacts for easy dialing. Large buttons make viewing easier.

http://doophone.com/

Wavier Programs Advisory Meeting June 18

2010-06-01T07:04:00.004-04:00

NORTHEAST PA CENTER FOR INDEPENDENT LIVING

WAIVER PROGRAMS ADVISORY MEETING

DATE: Friday, June 18th, 2010, 11:00am -1:00pm
RSVP: By Tuesday, June 15th, 2010

PHONE: Chris Klein 570-344-7211 ext. 208 or

Jennifer Nemeth 570-344-7211 ext. 241

E-MAIL: cklein@nepacil.org & jnemeth@nepacil.org

LOCATION: 431 Wyoming Avenue, Scranton
Wheelchair accessible entrance in rear parking area

TOPIC: State Budget Update, Waiver Programs-what works;

suggestions for improvements

Lunch and light refreshments will be provided

NEPACIL Closed May 31st

2010-05-28T07:14:00.003-04:00

NEPACIL will be closed May 31st in observance of Memorial Day.

Please take a moment to remember why we honor Memorial Day.

ADA And Politician's Views

2010-05-26T07:43:00.003-04:00

The on-going issue of politicians not supporting the ADA should be of high importance for those with disabilities. Many in elected office or running for elected office will not go on record with their positions. We need to find out where people stand before they are put in office or by the next election for those currently serving.

Example, "Joe Sonka, a local blogger for Barefoot and Progressive, questioned Rep. Ed Whitfield (R-KY) if his support for Paul extended to Paul’s opposition of the Americans with Disabilities Act and much of the Civil Rights Act. Whitfield, like many Republicans, dodged the question, claiming Paul never took issue with either of the laws." Is there something you're not telling us Rep. Whitfield?

While Kentucky officials and candidates are in the news for their views, don't think that their views are only held by a few in Kentucky. It's a lot easier to not say anything for fear of upsetting one side of a debate vs another. Even if you vote only for candidates in one party know where they stand on the issues don't just give away your vote.

Objection To ADA

2010-05-24T07:41:00.003-04:00

Rand Paul objects to the ADA.

With last week's primary still fresh in people's minds, Republican (Tea Party) candidate for Kentucky Senate Rand Paul, had an up-and-down week. His backers are happy he won the primary but many are wondering what it would be like if other Republican (Tea Partiers) would be in charge of government.

Paul has said he would have voted for the Civil Rights Act, but has issues with how it is written.

He did many interviews and while backtracking on his Civil Rights statement, his view on the ADA hasn't changed.

Speaking with CNN's Wolf Blitzer, Paul had this to say: "Let's say you have a local office and you have a two story office and one of your workers is handicapped. Should you not be allowed maybe to offer them an office on the first floor, or should you be forced to put in a hundred thousand dollar elevator?"

The law states:

Elevators are not required in:
(a) private facilities that are less than three stories or that have less than 3000 square feet per story unless the building is a shopping center, a shopping mall, or the professional office of a health care provider, or another type of facility as determined by the Attorney General; or
(b) public facilities that are less than three stories and that are not open to the general public if the story above or below the accessible ground floor houses no more than five persons and is less than 500 square feet. Examples may include, but are not limited to, drawbridge towers and boat traffic towers, lock and dam control stations, and train dispatching towers. "

Between not knowing what he is talking about, is uninformed, or simply doesn't care, Paul is having a tough first week. And that's not even getting into his using the term "handicapped."

Why does this matter? Rand Paul is one of the faces of the Republican (Tea Party.) They want only the basics of government. As he's stated he sides with business over accommodations.

How does this affect you? He is not the last candidate to have these views. Others will run for office. You may hear of someone with the same views running for U.S. Senate, Governor, etc.

If given the opportunity, would the ADA be repealed? We don't know, but would you be willing to find out? Remember when voting, there are those that you disagree with and there are those that want to take away your community living.

Landlord Doesn't Care Take 2

2010-05-21T08:29:00.002-04:00

Once again an elevator malfunctioning causes those in need to be stranded. Just days after an elevator broke down in a high rise in Scranton and situation happened in Wilkes-Barre. Firefighters were called to respond to a unrelated issue and found the elevator not working.

Residents were forced to leave their apartments, many had local relatives, but others had no place to go.

Was the elevator getting proper maintenance? Was this just an isolated instance? How can someone with a disability who uses a wheelchair to get from a top floor down? Are they on their own? What if firefighters were not there to assist? Can anyone be counted on to help?

Landlords need to take extra steps to assure the safety of the residents. Residents need to make their voice heard that they demand safety.

Thank you to the blog follower who sent the articles.

http://www.timesleader.com/news/Elevator_problems_strand_residents_05-19-2010.html

http://citizensvoice.com/news/high-rise-residents-return-home-after-elevator-repairs-1.797327

Voting Matters; Your Rights Can Be Taken Away

2010-05-19T06:55:00.003-04:00

Rand Paul, yesterday, won the U.S. Senate Republican nomination in Kentucky. He is a tea party backed candidate whose views are individuals over the government. This means you're on your own if you need help, no government assistance, no equality disability or not.

Paul wants to abolish the ADA. People with disabilities vs businesses, Paul sides with businesses.

Joe Sonka, reporting for the site, Think Progress, this passed weekend in Kentucky tells of Paul's view on the ADA.

"Paul was asked whether he supports the Americans with Disabilities Act, the landmark 1990 legislation that established a prohibition of discrimination on the basis of disability. Paul said he advocates local governments to decide whether disabled individuals deserve rights. Requiring businesses to provide access to disabled people, Paul argued, isn’t “fair to the business owner.”

Later in the interview, when asked if he believes Americans have a right to use the 2nd Amendment to violently overthrow the government, a Paul staffer physically intercepted the recording and shuffled Paul away:

PAUL: You know a lot of things on employment ought to be done locally. You know, people finding out right or wrong locally. You know, some of the things, for example we can come up with common sense solutions — like for example if you have a three story building and you have someone apply for a job, you get them a job on the first floor if they’re in a wheelchair as supposed to making the person who owns the business put an elevator in, you know what I mean? So things like that aren’t fair to the business owner. [...]"

Don't think this is an isolated point-of-view. There are candidates in every state that share his views. If others with his mindset get elected, your rights could be taken away. Don't think your vote (and who you vote for) doesn't matter.

Think about all the places you've gone since the ADA was implemented. If accommodations weren't made (and everyone benefits not just people with disabilities) would you be able to work, or have housing, go the mall, go to your favorite restaurant, get a haircut.

We are given this great power to vote. People with Disabilities have struggled for too long for equality in the community. If we're not careful someone, like Rand Paul, will take it away.

Every Vote Counts

2010-05-17T07:17:00.002-04:00

Tomorrow is Pennsylvania's 2010 Primary. If you're planning to vote (we hope you do), you can only vote for members in the party you're registered. If you are in the Democratic Party, you can only vote for Democrats, likewise if you're a Republican, only Republican choices are allowed. PA has a closed primary so if you're not party affiliated, you have no say.

If you're registered to vote but do not know where your polling location is go to:
https://www.pavoterservices.state.pa.us/Pages/VoterRegistrationStatus.aspx

With your basic information, county, first name, last name, and date of birth, you will know where to vote and if it's deemed accessible.

If the location is not accessible - do not leave. Get the workers attention (ask someone going in if you must) and get a provisional ballot. DO NOT LEAVE WITHOUT VOTING! IT'S YOUR RIGHT!

For future reference if the location is not accessible, call NEPACIL's Keith Williams, Community Organizer, at 570-344-7211 ext. 209. Keith is an expert in accessibility and will work with your county to assure that for November's General Election, accommodations are provided.

Remember, you may think your vote doesn't count but every election, someone wins by a few votes. You can make a difference.

Candidates For Governor Skip Disabilities

2010-05-13T08:06:00.002-04:00

The Disability Rights Network asked the candidates running for Governor 8 questions regarding disabilities. Out of 6 running, only 1 responded, Joe Hoeffel. Hoeffel is also the only one with any mention of disabilities on their website.

With this lack of response, it appears none of the candidates (besides Hoeffel) have a thought about disabilities. Days away from the Pennsylvania primary and it appears the candidates are playing it safe.

We know that in past years programs that people with disabilities rely on are at the front of the line for budget cuts. However, our hope with the next governor things will change. People with disabilities will remember those that ignore. Be aware candidates, you're losing votes before the election!

http://drnpa.org/alerts/id/785

Disabled Or Handicapped?

2010-05-10T07:56:00.002-04:00

Which do you go by? Are you disabled or handicapped?

People with disabilities have fought for a long time for inclusion in the community. The Americans with Disabilities Act (20th Anniversary - July 26, 2010) set guidelines for accommodations to buildings, venues, public areas, etc. The fight will continue until accessibility is not just a law, but a way of life that is universally understood.

The following scenarios happened within the last few weeks. You may have a similar situation.

A colleague with a disability was at a political rally. The colleague has a mobility disability that affects walking and standing for short periods of time can be tolerated. An offer to move to the "handicap" seating area was accepted. The area was on the side of the room and high enough that one could see over standing people's heads.

A woman, who may/may not have been with the venue, may have just been nosy, asked, "Are you handicapped?"

My colleague replied, "No, ma'am, I'm disabled."

She walked away did not return to ask any other questions.

That should be every one's response, at least.
-----------------------------------------------
A conversation I had with a mother speaking about her child being "handicapped." The child hates the term "handicapped." The mother said, "she knows you're not handicapped, you're disabled, but in the eyes of the program you're on it's whatever they say you are so you can the care you need."

If we want to break down the "handicap" barrier we all need to do our part. We need to remind those with/without disabilities that the person comes first and having a disability does not have to be negative.

Graffiti Artist Featured For First Friday

2010-05-06T07:04:00.002-04:00

Eric "Dontey" Williams, met NEPACIL's Rory Giovannucci, Housing Advocate, through the Community Intervention Center. Rory's eye for talent saw that Dontey has an artist gift. Dontey was challenged to make pieces to be featured for an exhibit on First Friday, May 7th, at B's Floral, 131 Penn Ave., Scranton.

Dontey is once again a featured artist as his work was on display in March. He will also be making a mural on a metal facing at 127 Penn Ave.

""We decided to do urban art and make it conducive for anyone who wanted to paint, so while Dontey is doing the mural, others can add to the design" on Friday evening, Mr. Giovannucci said.

Mr. Williams will complete a mural of urban art just two doors down from B's Floral on the metal facing of a long-closed property at 127 Penn Ave. as part of the First Friday art walk in downtown Scranton. Mr. Williams will start painting at 5 p.m.

B's Floral also will continue its Artists with Disabilities series, which is co-sponsored by Northeast Pennsylvania Center for Independent Living. The series displays works by Deutsch Institute clients.

"We have titled Dontey's show, 'Urban Renewal,' as in urban tag art and the artist's renewal," Mr. Giovannucci said. "He is an interesting individual who came to our attention as an artist for a fundraiser for the Community Intervention Center. His art rendering on tabletop sold quickly and thus we saw there was interest in his work."

Mr. Williams spends much of his time at the center, located in the 500 block of Wyoming Avenue, and is setting his sights on animation and the possibility of someday working for a major Hollywood company, Mr. Giovannucci said.

"We're excited about the mural because we are inviting so many others to participate in working on the mural, which Dontey will finish on First Friday," Mr. Giovannucci said.

Where: B's Floral Design Inc., 131 Penn Ave.
When: Friday, 6 to 9 p.m.
Details: Part of the Artists with Disabilities series. Admission is free. Also, a mural will be painted on the metal facing of 127 Penn Ave."

http://thetimes-tribune.com/arts-living/entertainment/scranton-graffiti-artist-has-designs-on-downtown-building-for-first-friday-1.764443

Children With Disabilities Needs Positive Parents

2010-05-03T07:49:00.004-04:00

The story, in today's Time-Tribune, regarding the young girl Gaia Caporale is positive but should be the norm. Gaia is 8-years-old, smart (can speak 2 languages), takes ballet, and is being taught along-side students without disabilities. She happens to be born with Down syndrome.

Gaia is fortunate to have caring parents that refuse to let their child's disability get in the way.
By taking a positive active approach, Gaia, her classmates, and the community can see that a disability does not mean someone should be excluded from activities.

Often parents isolate their children by "putting the gloves on" or "keeping them in a bubble" because people with disabilities are more "fragile." It is this thinking that makes children afraid of the world and the rejection it is perceived they would receive. By putting the disability ahead of the person, the disability takes priority.

http://thetimes-tribune.com/arts-living/dance-offers-dunmore-second-grader-with-down-syndrome-physical-and-social-outlet-1.748682

Landlord Doesn't Care

2010-04-29T07:26:00.003-04:00

Mulberry Towers, a high-rise, in Scranton is the home to many seniors and people with disabilities. It does not seem to matter to the owners that the residents lives are in danger.
If there is a situation where someone on a top floor needs an ambulance, which is faster carrying someone up and down multiple flights of steps on a gurney or using an elevator? (If there is a fire, nobody should use an elevator.)

For weeks, there has been only 1 working elevator. The owners say the part is on order, but it has to come from Germany. Is there no place in the United States that has elevator parts? Did Mulberry Towers import the entire elevator from Germany?

This is lowlife dealings by the owners to save some money.

Residents unite! Advocate for yourselves. Start a petition and have everyone sign it. Voice your opinion. Where is your rent money going if they're not doing up keeping of the building?

Disability Related Issues - Only Disabled Understand?

2010-04-27T07:09:00.002-04:00

If you do not have a disability, how much time, if any, do you spend wondering if there's a ramp entrance behind the building or if the restroom is ADA compliant? Chances are unless you know someone with a disability or are in a occupation that deals with people with disabilities, the time spent is minimal if the thoughts are there at all.

The link below is from the Times-Leader about "Marion Beddoe-Iobst, a Scranton woman who is legally blind, attempts to activate the signal to allow her to cross a busy intersection at Wyoming and Lackawanna avenues. She said the traffic signal does not leave enough time to cross and she was injured by a motorist at this intersection."

What does it take to get into people's heads to remember those with disabilities when making a decision affecting so many?

If you did work on setting the traffic signal times, would it even cross your mind that a person with a vision problem needs extra time or someone in a manual wheelchair has to go across multiple lanes of traffic.

Next time you see someone go intersection, count how long it takes to cross.

http://www.timesleader.com/scrantonedition/news/Group__city_blind_to_our_needs__concerns_04-25-2010.html

Disability Forum Pictures

2010-04-22T13:44:00.007-04:00

Front row: Moderator Fmr. Scranton Mayor David Wenzel, Host Keith Williams, NEPACIL.

Back row (L to R): Joe Corcoran, Chuck Volpe, John Blake, Frank Scavo, Chris Doherty

Debate begins: Williams, Wenzel, Timekeeper Brian Langan, NEPACIL, Blake, Corcoran, Doherty, Scavo, Volpe

Disability Issues Forum - Successful!

2010-04-22T06:56:00.004-04:00

Successful and educational could be used to describe yesterday's Disability Issues Forum held at the DeNaples Center on the campus of the University of Scranton. The disability community got their voice heard, which is not always the case. Candidates were educated first hand by agencies, businesses, families and individuals with a disability that people with disabilities need a friend to represent the 22nd Senate district.

Candidates on hand were John Blake, Joe Corcoran, Chris Doherty, Chuck Volpe, and Frank Scavo.

Questions ranged from transportation to housing to autism. Each candidate was given 3 minutes to respond.

All candidates have some knowledge or experience with people with disabilities. However, if they want people with disabilities to vote for them they need to study the programs more closely and the words they use. The term that was used often by candidates was disabled. 'We need to help the disabled.' 'The disabled need funding.' Remember, we want to be recognized as people first.

Funding is a key issue that the disability community cringes whenever a state budget is going to be enacted. Year after year, we have seen that when it comes time to get a budget passed and cuts are needed - what programs get the big cuts? Those serving the disability community. Each candidate said they would look for the crucial funding so those that want to stay in the community will have the option. We will have to keep advocating for funds if want to see results.

Senate Debate - 1 Day Away

2010-04-20T07:50:00.002-04:00

The Debate with the candidates for the Senate seat of the 22nd district is tomorrow. A story was written by the Times Leader and a blurb was written by the Times-Tribune.

Four of the seven candidates are confirmed, 1 no - Wansacz will be in session with the State House, and 2 ???

If you plan on attending parking will be an issue. The University of Scranton does not have many public parking areas (the ones that are will likely be filled.) Street parking is metered or residential so that will eliminate many spots.

Accessible Parking? Good luck. Parking garages have only a few accessible spots of which only a few are van accessible.

http://www.timesleader.com/news/Senate_hopefuls_in_22nd_to_address_disability_issues_04-14-2010.html

http://thetimes-tribune.com/news/disability-group-hosting-forum-1.731059

Ask The Candidates

2010-04-15T07:17:00.002-04:00

With the 22nd State Senate Candidate Debate a week away, what would you ask? The debate centers on disability related issues - housing, transportation, jobs, etc. (depending on how much time there is topics may/may not be covered. There will also be a open question and answer period.

A hot topic of debate is per diems legislators receive when in Harrisburg. Each year it varies (probably only going up), this year it's $163 and no receipts are required. That money can go towards food, housing, travel, movies, baseball games or even pocketed - who knows they don't have to provide proof.

State Rep. Wansacz, who is running for the State Senate seat, in a story about him in today's Times-Tribune, "If elected a senator in November, Mr. Wansacz, a state representative, told the Times-Tribune editorial board he would immediately begin submitting receipts for actual expenses and stop taking per diem payments."

Why wait so long Rep. Wansacz? What are you hiding as a Representative that you won't as a Senator?

Scranton Mayor Chris Doherty is also running for the State Senate seat. You may recall he was just running for Governor, then Lieutenant Governor, now State Senator. How many offices are left? If Wansacz wins the Democratic Party's primary nomination, would Mayor Doherty try for a write-in candidate for Wansacz's Representative seat?

What about the other candidates? Not much is known about them, but we should know why they're running. They should spare us the canned talking points responses - government is broken, I'm going to get things done, time for a change. Everyone knows once you get into office it's a lot harder to keep those promises than when you make them.

http://thetimes-tribune.com/news/wansacz-says-he-would-surrender-per-diems-1.731053

Debate: State Senate 22nd District Candidates

2010-04-13T07:29:00.008-04:00

The Disability Coalition of Northeast Pennsylvania invites you to a Disability Issues Forum featuring candidates the State Senate 22nd District

April 21
2:00 PM – 5:00 PM
DeNaples Center
University of Scranton
Mulberry Street

The candidates are running for the seat held by
Senator Robert J. Mellow, who will retire in December.

Come and hear their positions on services which help people with disabilities to live in the community, and proposed legislation about issues affecting YOU!

You will also have the opportunity to ask the candidates questions
about disability related programs and express your views.

Need a sign language interpreter or other reasonable accommodation?

Contact Keith Williams at 344-7211, Ext. 209, or kwilliams@nepacil.org

Participating agencies: The ARC of Lackawanna County, Community Intervention Center, Deutsch Institute, Disabilities Rights Network of PA, Friendship House, Keystone Community Resources, Lackawanna County Area Agency on Aging, Lackawanna County Office for the Physically Disabled, Northeast PA Center for Independent Living, Lackawanna Branch PA Association for the Blind, United Cerebral Palsy of Northeast PA, Voluntary Action Center

Service Dogs Can't Get Food Stamps

2010-04-12T07:03:00.002-04:00

James Douris, a diabetic, uses a service dog to pull his wheelchair. The Commonwealth Court ruled he can not use food stamps to pay for dog food. Mr. Douris cited the dog as a member of his household. The judges say the law states a service dog is a "medical appliance."

They ruled at the Department of Public Welfare had not violated laws against animal cruelty and the Americans with Disabilities Act. However, the judges sympathy only went so far as to they were disappointed DPW did not provide large font documents due to Douris' vision problems.

http://www.upi.com/Top_News/US/2010/04/07/Disabled-man-loses-bid-for-dog-food-stamps/UPI-82571270676798/print/

We don't know the whole story of Douris' situation. Can he afford to pay for dog food? Or is he just trying to gain the system? If the dog food is too expensive (40 lb. bags are roughly $35 depending on brand) then we need to know Douris' expenses.

Everyone can agree that service dogs are a valuable part of a person with disabilities life that many can not function without. If the situation is due to lack of money received, then an evaluation of expenses is necessary. If Douris is out to keep the dog food money for something else then he is hurting not only himself with his selfishness, the service dog who deserves a lot more than food, and every person's time involved with the frivolous issue.

Governor Rendall Slashing Program Funding; Services To Be Cut; Advocate For Services

2010-04-08T07:02:00.003-04:00

You need to (start) contacting your state representatives and governor. With (budget) numbers being talked about services can not be left behind.

Everyone can agree that last year's budget disaster (not passing the state budget for months) can not be repeated this year. Lucky for us Gov. Rendell started the process early and now we're seeing some budget numbers - and it's not looking good. Revenues are down, which means, cutting services, the poorest and those with disabilities are always affected most and this is no exception.

A budget cut in one general area, say social agencies, those that help those with disabilities, of even one percent does not seem like much when dealing with a $27 billion budget (approx.) However, the general area has many programs under that social agency umbrella. A one percent cut across the board means each program makes cuts.

People in need of services: aides, transportation, housing, meals may lose services. The people waiting to be put on the programs will never get accepted.

Think about it. The people most in need of services, will be without them, you could need those services someday. What will you do if they're not there?

Waiver Services On Hold; AG Wastes Taxpayer Money For Political Gain

2010-04-06T08:23:00.004-04:00

Pennsylvania, like many states, have made and will have to make drastic cuts in services or raise taxes. All state spending must be used for maximum dollar value. People who want to live independently at home and not in a nursing home is state spending that maximizes the dollar value. Remember it costs 3 times more money for someone to live in a nursing home than in the community.

Most state Attorney Generals know it would be a waste of taxpayer money and time to sue the Federal Government since they will not win in court. The few Attorney Generals who have said they would file a lawsuit were all Republican and seeking higher office, PA Attorney General Tom Corbett is one of them (Louisiana Gov. may have struck a deal with LA AG to save funds.)

Here's what Kentucky AG Jack Conway said about the lawsuits ""Most constitutional scholars looking at this issue say it is absolutely clear that these lawsuits will not be successful...And I'm not going to waste the taxpayer resources of the people of Kentucky on political stunts."

Since health care reform passed into law, a host of state attorneys general have pledged to launch lawsuits challenging the legality of the bill's mandate that individuals must own a form of insurance coverage. Conway, likewise, has been urged by conservatives in the state to do the same even though, as he predicts, it could require tens of thousands of dollars and "significant hours for three or four attorneys."

"In Kentucky, my budget has been cut by 26 percent," Conway said. "We are not just cut to the bone, we are into the bone... To take some of my assistant AGs and put them on a frivolous lawsuit makes no sense."

Particularly if the merits of the potential suit are baseless. Conway argued that the commerce clause made clear that the federal government has the authority to regulate in the area of insurance mandates. He also dismissed the idea that the health care legislation was a violation of the 10th Amendment, saying that there was nothing "commandeering" about the language. "If the states choose not to set up an exchange, [Health and Human Services] does it for them," Conway said. Finally, he argued that if a theoretical lawsuit were to be upheld, it could "potentially pave the legal way to do away with Social Security" -- the logic being that Congress could no longer tax Americans for the purpose of ensuring broader social services.

Outlining such defined legal arguments in favor of health care legislation may not seem to be the smartest political tactic for a Senate candidate in a decidedly conservative state. But Conway remains a firm supporter of the bill, citing the more than 650,000 people in his state who are currently uninsured, and the notion that the legislation has been hurt, primarily by a torrent of baseless vilification.

"Once people see this good provisions in this bill, that you can't be denied coverage for a preexisting condition... once you see the insurance reforms that are going to help people in this bill, I think support will only grow," Conway said. "The Republicans are going to try and put health care around the necks of Democrats this fall. While Kentucky may be more conservative on social issues, it is a state with tremendous democratic needs. And this is a major democratic need.""

Suit Allows Disabled To Walk; Costs $20,000

2010-04-02T10:10:00.004-04:00

For people with disabilities, the ability to walk may only be a dream. However, the dream maybe close to reality with a new "suit" that gives the user mobility to walk. Arm braces are needed for balance. Walking, sitting, stairs, may all be obstacles overcome with this new invention. How soon it becomes a reality and a affordable reality, only time will tell.

http://www.techeblog.com/index.php/tech-gadget/remote-controlled-exoskeleton-suit-allows-the-disabled-to-walk

Hearing Rescheduled - April 7, 10 AM - 3 PM At NEPACIL

2010-03-31T07:25:00.002-04:00

The State Plan on Independent Living Public Hearing has finally been rescheduled. Join us as we listen in via speakerphone. Harrisburg is the location of the hearing but why go that far when we're just a phone call away. You can come and go as you please. A draft of the State Plan on Independent Living, which proposes how services will be delivered to meet the needs of people with disabilities in Pennsylvania is available at www.pasilc.org

Often you thoughts and/or opinions on the plan.

For further information contact Keith Williams at 570-344-7211 x 209 or kwilliams@nepacil.org

April 7, 2010

Lower Level Conference Room

IBEW Building

431 Wyoming Ave., Scranton

10 AM - 3 PM

People With Disabilities Logos - All The Same?

2010-03-29T07:41:00.002-04:00

NEPACIL Staff Rory sent in a link that led me to the original article (click here.)

Whenever you see a logo for people with disabilities do they look similar? There's someone in a wheelchair, someone with a cane, etc. but there is a group missing. I won't spoil it for you but once you get the answer it does surprise you.

Health Care Reform Bill Benefits

2010-03-25T08:03:00.005-04:00

During the Health Care Reform Bill (HCR) debate only a few items were discussed. Funding for abortion - there is none. Pre-existing conditions - now must be covered. Limits of care - no limits now.

The bill promotes community-based living by keeping the Community First Choice Option. People with Disabilities benefit when states receive matching federal funds with the elimination of caps.

Insurances will now be required to cover rehabilitation services.

These provisions are just some of the big positive changes for people with disabilities and without with the HCR law.

Health Care Reform Passed; States Challenge Immediately

2010-03-23T07:28:00.002-04:00

The Health Care Reform (HCR) Bill, being signed today, will benefit many people without health insurance but will now have access to it, and those with health insurance will pay less to make up the difference for those without insurance.

Local Congressman Carney and Kanjorski voted in favor of HCR. Both see it as a starting point that will save millions of people from financial ruin and give people who other-wise would not have insurance.

Here are a few immediate benefits

Prohibit pre-existing conditions for adults and children
Prohibit dropping coverage when you get sick
Lower seniors prescription drug prices
Tax credits for small business
Eliminate life-time and annual limits on benefits
Children allowed on parents insurance plan until age 26

As immediately as the bill was passed attorney generals and state lawmakers are trying to get it overturned. Approximately 8 state Attorney Generals (PA is one) will try to take the bill to court saying it's unconstitutional. Having everyone get insurance is against the law. It will be hard to argue a case since there are provisions that do not start for a few years. (How can you be against something that hasn't happened?)

Is it a coincidence that our state Attorney General Tom Corbett, a Republican, is also running for governor?

State Rep. Matt Baker (R-Bradford/Tioga) and Rep. Curt Schroder (R-Chester) have introduced the Health Care Freedom Act to opt out of the federal plan.

Everyone should agree that HCR was needed. If you pay for your health insurance ask yourself this question, How long can I afford to keep paying for health insurance when premiums go up 20% every year?

Tax Tips For People With Disabilities

2010-03-18T07:07:00.002-04:00

The following tax tips are from the IRS. We don't offer any tax advice so check with your tax preparer to see if you qualify. (If you do you own taxes, you may want to do some research to see if you qualify.)

"Seven tax tips for disabled taxpayers
Written by Internal Revenue Service
Thursday, 18 March 2010

Taxpayers with disabilities may qualify for a number of IRS tax credits and benefits. Parents of children with disabilities may also qualify.

Listed below are seven tax credits and other benefits that are available if you or someone else listed on your federal tax return is disabled.

1. Standard deduction: Taxpayers who are legally blind may be entitled to a higher standard deduction on their tax return.

2. Gross income. Certain disability-related payments, Veterans Administration disability benefits, and Supplemental Security Income are excluded from gross income.

3. Impairment-related work expenses: Employees, who have a physical or mental disability limiting their employment, may be able to claim business expenses in connection with their workplace. The expenses must be necessary for the taxpayer to work.

4. Credit for the elderly or disabled: This credit is generally available to certain taxpayers who are 65 and older as well as to certain disabled taxpayers who are younger than 65 and are retired on permanent and total disability.

5. Medical expenses: If you itemize your deductions using Form 1040 Schedule A, you may be able to deduct medical expenses. See IRS Publication 502, Medical and Dental Expenses.

6. Earned Income Tax Credit (EITC): The EITC is available to disabled taxpayers as well as to the parents of a child with a disability. If you retired on disability, taxable benefits you receive under your employer’s disability retirement plan are considered earned income until you reach minimum retirement age.

The EITC is a tax credit that not only reduces a taxpayer’s tax liability but may also result in a refund. Many working individuals with a disability who have no qualifying children, but are older than 25 and younger than 65 do – in fact – qualify for EITC.

Additionally, if the taxpayer’s child is disabled, the age limitation for the EITC is waived. The EITC has no effect on certain public benefits. Any refund you receive because of the EITC will not be considered income when determining whether you are eligible for benefit programs such as Supplemental Security Income and Medicaid.

7. Child or dependent care credit: Taxpayers who pay someone to come to their home and care for their dependent or spouse may be entitled to claim this credit. There is no age limit if the taxpayer’s spouse or dependent is unable to care for themselves.
For more information on tax credits and benefits available to disabled taxpayers, see Publication 3966, Living and Working with Disabilities or Publication 907, Tax Highlights for Persons with Disabilities available on IRS.gov or by calling 800-TAX-FORM (800-829-3676)."

http://www.irs.gov/

Be Your Own Advocate! You Will Be Heard

2010-03-16T07:08:00.003-04:00

We can't stress this enough as you (people with and without disabilities) make a difference when your message is voiced. Contact your local, state, federal representatives and tell them no cuts to funding. When people use their vote to get their voice heard the representatives get the message.

Many states are not able to balance their budget without severe cuts, lawmakers think that people with disabilities will not mind if their programs are cut. (See post from Monday about South Carolina cuts.)

The latest example is from Kansas where advocates for people with developmental disabilities are fighting at the Kansas Supreme Court to restore funding.

http://www.kansas.com/2010/03/13/1223349/disability-advocates-ask-court.html

Tax Vs Cut Funding

2010-03-08T07:26:00.004-05:00

People with Disabilities need voters to help in St. Louis County (St. Louis, MO.) A half-cent sales tax would provide funds needed for transit. This will directly affect their independence. Without the funds people with disabilities will not be able to afford to travel from their homes to appointments, shopping, work, etc.

For those without disabilities the tax may feel like a burden, but remember, at any time, anyone can become disabled. How would you feel if you voted against the tax (or didn't vote at all) and you get a disability, but because you voted no, you can't get to your doctor, get groceries, go to work.

http://www.globe-democrat.com/news/2010/mar/07/persons-disabilities-campaign-sales-tax-passage/

South Carolina is in a state budget shortfall that may lead to cut all state funding for 26,000 South Carolinians with disabilities. The state budget is in a $560 million budget hole. They would close all but "federally required residential care."

Lawmakers refuse to consider a tax increase leaving little choice. Parents will also have little choice between working and caring for their children.

http://www.google.com/hostednews/ap/article/ALeqM5gip-ZNznBlNloEWf43kz3M0VObyQD9E78QJ00

First Friday – Artists With DisAbilities

2010-03-04T07:17:00.000-05:00

B’s Floral and NEPA CIL bring you DONTEY

As part of the on-going series Artists with DisAbilities, DONTEY, “an artist whose specialty is Urban Art or what we generally call Graffiti Art (Tag Art). We have entitled his show: “URBAN RENEWAL” (urban tag art, and the artist’s renewal) He is an interesting young individual who came to our attention as an artist for “Get Off Your ARtz” chair fundraiser for the Community Intervention Center. His art rendering on table top sold quickly and thus we saw there was interest in his work. He spends much time at the CIC and so from a “gritty” arena of art featured primarily on bridges/buildings and railroad cars throughout NYC, he now is setting sights on animation and the possibility, with much hard work, getting a gig with DreamWorks : www.myspace.com/maxbudden07 "

6 pm – 9pm B’s Floral 131 Penn Ave. Scranton, PA

CANCELLED - Public Meeting March 2nd

2010-03-01T07:29:00.001-05:00

Just received word that the meeting March 2nd at the Radisson in Scranton has been cancelled. No word if/when there will be a new date. Will keep you all posted if/any new information becomes available.

Consumers Invited To Public Hearing March 2nd

2010-02-22T06:57:00.000-05:00

The State Plan on Independent Living public hearing on March 2 at the Radisson. It runs from 10 AM - 2 PM and people can come and go as they wish.

The Statewide I.L. Council conducts the hearing every three years. The purpose is to get ideas/experiences/feedback from consumers about what is needed/recommended to improve services for people with disabilities. Topics include CIL services, attendant care, transportation, employment, services for people who are deaf/hard of hearing, etc. Comments from this and other hearings across PA are used to develop a state plan containing goals and objectives to increase the independence of people with disabilities.

We need to encourage consumers to attend but the Council still does not have a flier printed. As a result, I'm asking you to send me names and phone numbers of consumers who may potentially want to attend. I'll call them and follow up with mailing a flier. People can also e mail or snail mail comments. That information will be found on the flier.

Thanks in advance for your assistance in empowering people with disabilities.

Keith

Hiding from Our Disabled

2010-02-19T09:41:00.001-05:00

The following was sent in by NEPACIL Staff Rory.

"posted by Ann Pietrangelo Feb 15, 2010 9:03 am

Do you walk on eggshells around people with chronic illness or disabilities? If so, you are not alone.

Maybe you’re a little uncomfortable — you don’t know quite what to say and don’t want to stick your foot in your mouth. You want to ask questions but don’t want to pry. In our “politically correct” world, eggshells are all over the place.

Most literature about chronic illness informs us that stress can aggravate symptoms and cause relapses, and a lot of us can attest to that fact. Avoiding undue stress is a positive thing.

However, we cannot divorce ourselves from planet earth and the reality of every day life. Taking
the concept of avoiding stress too far, especially within the family, can result in pent-up resentment by all concerned.

Most people who have a chronic illness or disability are functioning members of society and integral members of family life. Rather than avoiding that person or avoiding the problem altogether, why not approach them as you would anybody else?

Adults with chronic illness or disabilities want… and need… to be included in important issues, even potentially negative ones. Family and friends, or even co-workers who overprotect can end up causing more harm than good, adding to their own stress levels in the process. It is a vicious cycle that raises tensions and prevents functional problem solving. Good intentions don’t always equal good outcome. Life is fraught with highs and lows and it is folly to try to protect someone from life itself.

Perhaps you are the one with a chronic illness or disability, going out of your way to paint a rosy picture and keep your problems to yourself. We all want to put our best foot forward and, unquestionably, that’s as it should be. But taken to the extreme, it sends the wrong message and can lead to misunderstandings and unexpressed anger. Clearing the air about problems as they arise will ease tension in the long run.

Eggshells be damned. No more hiding. Rather than allowing chronic illness or disability come between you, make a pact to face it honestly and speak freely. Empowerment is gained through being part of the solution rather than part of the problem. We’re all just people.

Writer Ann Pietrangelo embraces the concept of personal responsibility for health and wellness. As a person living with multiple sclerosis, she combines a healthy lifestyle and education with modern medicine, and seeks to provide information and support to others. She is a regular contributor to Care2.com’s Reform Health Policy blog in Causes. Follow on Twitter @AnnPietrangelo."

Be Your Own Advocate!

2010-02-17T07:07:00.002-05:00

From time to time, a bill will come up in the state legislature or Congress, that may concern you but haven't heard. It seems like the only bills that get talked about deal with the big issues, war, health-care, etc. They are all important issues.

Other bills that do not get the attention can affect you just as much. Example, a elected official puts in a bill, about national parks, a provision that people with disabilities can only use public transportation from 8am to 2 pm. (While this is highly unlikely, one never knows and something like this could happen.)

Some bills are not direct such as the example above, while others are for the specific topic. Example, the state legislature wants to cut waiver program funding because the budget must be cut and a few people don't like the program.

These examples may seem extreme but not out of the question, which is why they are brought to your attention. This is why it is suggested you let your elected official know, I will ride the bus when I want to, or the waiver program keeps me living independently.

You could call, e-mail, write or do all 3, the elected officials do take note of your opinion and consider it when voting. Your contact does make a difference.

NEPACIL Closed For President's Day Feb. 15th

2010-02-12T07:57:00.001-05:00

Just a remind in observance of President's Day NEPACIL will be closed. We will return at 8:30 am Tuesday (weather permitting.)

Disability Related Offensive Language Okay To Quote?

2010-02-08T09:05:00.002-05:00

The disability community was recently upset with White House Chief of Staff Rahm Emanuel, after it was reported he used the r-word last August. Many people on television were quoting Emanuel and used the r-word in quotes and without quotes.

Do you feel that it matters if some uses derogatory language if they quote the person who says it? Is it okay to say it if you're having a "civilized discussion" and it's not directed at someone to insult them?

Is it ever okay?

Consumers - Waiver Advisory Meeting 02-19-10

2010-02-04T08:21:00.000-05:00

OVR Earns National Award for Excellence

2010-02-01T07:28:00.003-05:00

Many of you know that CILs receive funding from OVR in order to be a CIL. Without funding from OVR, a CIL would not be able to be called a CIL. Not only does the CIL receive funding as an organization, but many have worked with OVR on an individual level to allow us to be independent at home. From ramps to lifts to vehicle modifications OVR has been a big part of our lives and in many cases have been the difference in independent living.

OVR received "the National Council of Rehabilitation Education President’s Award for Excellence in Vocational Rehabilitation."

"The President’s Award honors state agencies that utilize partnerships between their state vocational rehabilitation agencies and university training programs. The agency must also demonstrate an innovative service program with a special emphasis on partnering with the rehabilitation educational programs nationwide to enhance services to individuals with disabilities who are seeking employment.

Since 2002, OVR has hired more than 400 new Vocational Rehabilitation Counselors, each with a master’s degree in rehabilitation counseling. In addition, more than 120 employees who were already working as Vocational Rehabilitation Counselors have upgraded their professional credentials to include certified rehabilitation counselor credentials or a master’s degree in rehabilitation counseling."

http://www.gantdaily.com/news/43/ARTICLE/70966/2010-02-01.html

Department Of Emergency Services

2010-01-29T10:40:00.002-05:00

Did you ever fill out a form to your county Department of Emergency Services? Each county should have a form that you can list your disabilities should there be a fire or other emergency. This will tell emergency responders that you may need help more so than someone without a disability.

Follow the link for information on Lackawanna County's DES.

http://www.nepacil.org/DES%20Form.htm

Should TV Shows/Movies Hire Actors With Disabilities For Roles?

2010-01-27T09:20:00.003-05:00

How many tv shows or movies have you seen where someone is "acting" with a disability? Should the actor be someone with a disability? Does it matter to you?

A FOX tv show, Glee, has been getting a lot of attention lately. It stars a character who uses a wheelchair, the actor is not a person with a disability.

Whenever I see someone with a disability on tv or a movie and they're portrayed in a positive light then that benefits us all. However, the stereotype is for people with disabilities to be pitied or looked down upon and that benefits no one.

http://www.examiner.com/x-29439-Denver-Disability-Examiner~y2010m1d19-Golden-Globe-winner-Glee-part-of-disabilities-controversy

Important Information Please Read Action Is Needed

2010-01-22T08:37:00.003-05:00

After almost a of year of waiting, HB 60 -- the state housing trust fund bill -- is coming up for a floor vote, possibly as early as next week. Please help us move this bill.Call, fax or email your State Representative Monday, January 25, and tell them to vote YES on HB60, the PA housing trust fund bill. PA voters want their legislators to DO SOMETHING about the lack of affordable homes. A recent voter poll shows they SUPPORT the housing trust fund. Let your Rep know!

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The following alert is from the Disability Rights Network of PA: Friends - The Department of Public Welfare has announced that it will cut by up to a 24% the supplements it pays to federal Supplemental Security Income (SSI) recipients. Unless reversed, DPW's action means that individual SSI recipients now receiving only $27.40 per month as the state supplement will get $22.10. Couples receiving SSI will see their supplement cut from $43.70 per month to only $33.70 per month. Even at the higher numbers, persons getting the supplement must live at approximately 75 percent of the federal poverty level. It is a disgrace that the Commonwealth failed to include in its budget adequate funds to continue to support persons who are aged or have disabilities that make them unable to work and who are already living below the federal poverty level. Written comments regarding these cuts can be sent to: Edward J. Zogby, Bureau of Policy, Room 431, Health and Welfare Building, Harrisburg, PA 17105, or sent to Mr. Zogby at ezogby@state.pa.us. Persons with a disability who require an auxiliary aid or service may submit comments using the Pennsylvania AT&T Relay Service at (800) 654-5984 (TDD users) or (800) 654-5988 (voice users). Comments must be received by February 14, 2010.Below is the Pennsylvania Bulletin notice announcing these cuts.

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Your Help is Needed
The U.S. Census counts every resident in the United States and is required by the Constitution to take place every 10 years. The data collected by the Census helps communities receive more than $400 billion in federal funds each year for low income populations, providing services to children, the disabled, veterans, and the elderly. These funds are also used for planning of hospitals, clinics, nursing homes, and other residential and rehabilitation facilities.
Therefore, the Department of Aging and the Office of Long-Term Living are asking for your cooperation with the 2010 Census Bureau to accurately count the population we serve.
Prior to March 2010, the Census Bureau will be sending a letter to all providers explaining the requirements to complete the Census forms for your targeted population. National Census Day – April 1 – will be used as the point of reference for counting those being served by you.
Thank you in advance for your cooperation in counting our nation’s population.
To find out more about the Census, the new form, or how the process works, please visit http://www.2010census.gov/

Note: Please share this with other members of your organization. If any changes to your e-mail address occur, please contact the Office of Long-Term Living.

NEPACIL Newsletter Available

2010-01-21T08:29:00.002-05:00

Hot off the press! The NEPACIL Newsletter OPTIONS is available for download. If you are on our mailing list, it should be there soon. If you're not on our mailing list, why not?

http://www.nepacil.org/

Blocked In At Geisinger Wyoming Valley

2010-01-19T07:57:00.002-05:00

Kudos to Geisinger Wyoming Valley for quickly taking care of a situation that could have caused me to miss an appointment (and ruin my day.)

It happened again. The van ramp extended but I was not able to get my wheelchair in properly. I struggled to maneuver in front of the ramp. Why? Someone with an accessible placard parked 2 ft. in the grated area.

I was in-between appointments going from one building and driving up the road to another with no time to waste. I found a way to back over the ramp (this is the last time I'm doing that, it's going to break if I keep doing that.) I flipped up my foot-plates and using all the space I could (my pants and shoe will vouch for that as they get covered in dirt.)

Meanwhile, once I couldn't just drive in, my mother went back to the building to explain my situation. Immediately they paged the license plate. When told of another appointment within the Geisinger family, they called the doctor to tell them I would be late.

My mother was surprised to see that I was waiting for her in the van.

We made it exactly on-time.

Hopefully the person was notified of what they had done and learned from it (I'm not counting on it though.)

Ribbon Cutting Ceremony

2010-01-14T07:03:00.008-05:00

This maybe old news but.....
The occasion was the ribbon cutting ceremony for the "Boundless Playground," that Lackawanna County Commissioners have been touting since NEPACIL's 20th Anniversary.

All children will benefit from playing side-by-side. Barriers will be broken. Every playground should be this accommodating.

Photo from Lackawanna County website.
http://www.lackawannacounty.org/ViewEventDetails.aspx?EventID=1210

Flu, Pneumonia, H1N1, Shots - Did You Get Them?

2010-01-11T07:20:00.002-05:00

Normally, I do not get any shots. I try to take care of what I eat and what I wear. Eating right will keep up your immune system strong to fight off colds or worse. I wear layers and keep warm as possible throughout winter. I'm usually good for a cold and maybe a runny nose for a bit.

This leads me to the shots.

I went to the doctor last week and he (strongly) suggested I get a flu shot and pneumonia shot. I told him I would go without. However, a few weeks prior I became ill and because of that if I did get the flu or pneumonia it would be much worse than getting it under normal circumstances.

I didn't want to take a chance of "much worse" so I agreed to both shots, one in each arm.

Do you usually get the flu shot? Pneumonia shot? H1N1 shot? If not, what is the reason for not getting them?

Snow Storm, Plan Ahead

2010-01-08T07:23:00.005-05:00

How do you get around when there's a snow storm? How do you get around after it ends? Do you have family/friends/neighbors/attendants to help?

Everyone should plan ahead and take precautions when there's a storm. It's better to arrive late than hurt or not at all.

LIHEAP Expansion

2010-01-06T07:08:00.002-05:00

"Jan. 5, 2010
Governor Rendell: Efficient Management Allows Expansion of Home Heating Program for Low-Income Families

Harrisburg – Governor Edward G. Rendell today announced significant changes to Pennsylvania’s Low-Income Home Energy Assistance Program – better known as LIHEAP -- that will help keep low-income families warm this winter.

The federally-funded LIHEAP helps income-eligible households pay for heat during the winter months and is administered by the Department of Public Welfare.

“As a result of smart policy decisions and efficient management of LIHEAP resources, we are able to increase cash grant amounts by $100 and extend the program through April 2,” said Governor Rendell. “These steps will help to ensure Pennsylvania families can stay safe and warm during the cold winter months.

“These changes will bring needed relief for the many families who continue to struggle to make ends meet,” added Governor Rendell. “Should the federal government release additional contingency funds as it has done in previous years, Pennsylvania would be positioned to increase grant amounts to vulnerable households – those over 60, with a disability or with children aged five and under.

“We estimate that by extending the LIHEAP closing date from March 15 to April 2, an additional 80,000 households will receive help paying for their heat,” the Governor added.

This year, all LIHEAP applications are run through a new computer system which includes more eligibility checks. As a result, the opportunity for fraud or abuse of the system has been significantly reduced.

DPW expects to assist approximately 600,000 families with cash grants during the 2009-2010 program year. As a result of the Governor’s announcement, cash grants for the current season are expected to average $326.

DPW expects to provide LIHEAP crisis grants to 126,000 households this season. Crisis grants are offered to resolve heating emergencies, such as furnace failures or unexpected fuel shortages. In addition to proof of income and household size, applicants must provide a recent bill or a statement from their fuel dealer verifying their customer status and the type of fuel that they use.

Applications are available at county assistance offices, local utility companies and community service agencies, such as Area Agencies on Aging or community action agencies. Applications for LIHEAP cash grants are available online at www.compass.state.pa.us.
Residents of the counties listed below are encouraged to contact the agencies that operate the crisis component in their areas:
· Carbon - Carbon County Action Committee, (610) 377-6400
· Lackawanna - Scranton-Lackawanna Human Development Agency, (570) 963-6836;
· Luzerne - Commission on Economic Opportunity of Luzerne County, (800) 822-0359
· Wyoming - Commission on Economic Opportunity of Wyoming Co., (570) 836-4090

To ensure they have adequate resources to heat their homes the entire winter, LIHEAP consumers are urged to keep their thermostats at 65 degrees – unless they have young children or older adults living in the home. Visit www.turnsealsave.org to learn about available assistance programs, energy conservation and home weatherization tips.

Editor’s Note: Household sizes and income limits for LIHEAP’s 2009-10 season are listed below.
1 -- $16,245
2 -- $21,855
3 -- $27,465
4 -- $33,075
5 -- $38,685
6 -- $44,295
7 -- $49,905
8 -- $55,515
(For each additional person add $5,610)."

$1.1 Billion Toward Accessability

2010-01-04T07:10:00.002-05:00

You read correctly, $1.1 Billion "..over the next 30 years to repair and improve state-controlled sidewalks, crosswalks and park-and-ride facilities so they are accessible for people with disabilities.

The settlement, filed at the federal courthouse in Oakland, was a major victory for civil rights activists, who have been battling for years with the transportation agency to provide equal access to public rights-of-way for the blind and those who use wheelchairs, canes or walkers.

Advocates said they hoped that the agreement would become a national model for resolving disputes between the disabled and other state and local governments.

"The settlement applies to about 2,500 miles of sidewalk, crosswalks and 300 park-and-ride facilities that are owned and maintained by Caltrans. Intersections, pedestrian overpasses and underpasses are also subject."

http://www.latimes.com/news/local/la-me-caltrans23-2009dec23,0,5587783.story

PA Property Tax Rebate Deadline - Today

2009-12-31T07:15:00.001-05:00

"Eligible older adults and residents with disabilities have nine days to submit Property Tax/Rent Rebate applications before the Dec. 31 deadline.

"About 100,000 Pennsylvanians who qualify for Property Tax/Rent Rebates have not yet applied," said Acting Secretary of Revenue C. Daniel Hassell. "Time remains for residents to look over the program's requirements to see if they could benefit like more than 578,000 people who already received rebates this year."

Applications are available for download at www.papropertytaxrelief.com, and forms and assistance are available at Revenue district offices, legislators' offices, area agencies on aging, and senior centers. Assistance is also available by calling, toll-free, 1-888-222-9190 Monday through Friday between 7:30 a.m. and 5 p.m. State offices will be closed Dec. 25.

Claimants are reminded to provide all necessary income, property tax or rent information in order for claims to be processed accurately and quickly. Applications must be postmarked by Thursday, Dec. 31, to be considered."

http://www.prnewswire.com/news-releases/nine-days-remain-for-eligible-older-adults-people-with-disabilities-to-apply-for-property-tax-rent-rebates-79997292.html